Here you can create a medical emergency letter for metabolic disorders that can lead to metabolic decompensation. Having an emergency letter and knowing how to use it can help prevent life-threatening situations and improve communication between parents and healthcare professionals. This emergency letter is specifically intended for patients with urea cycle disorders (UCD). In the future, more conditions characterized by metabolic decompensation will be added. For now, the emergency letter for patients with urea cycle disorders (UCD) is only available in Dutch.
.svg?width=1980)
Here you can generate a personalized emergencyletter.
We recommend that you keep the patient's accurate weight, disease name and date of birth at hand. We also recommend (especially for children) that you renew this letter every 6 months. Doctors and patients are encouraged to jointly fill the form to ensure that the information in the emergency letter is accurate.
